Crescent Kids Research Strategy
CRESCENT KIDS has a broad range of interest in the field of paediatric hepatology. This strategy identifies the priorities for funding in CRESCENT KIDS’ Research Funding Programme for 2021-2026 and further initiatives aimed at supporting research into paediatric hepatology. The availability of funding will always influence CRESCENT KIDS’s programmes.
This strategy is based on CRESCENT KIDS’s current and projected income levels. However, there is flexibility if the situation changes. CRESCENT KIDS will look to fund a PhD Fellowship and main grants round, alternating on a two-year cycle. We will also look to opportunities to work with allied organisations to joint fund the main grants round during the strategy period.
Priorities for paediatric haemoglobinopathies research funding 2015 -2020
Underlying principles in research delivery
CRESCENT KIDS Research Hub
CRESCENT KIDS will create projects during the strategy period, which increase opportunities for families and young people to learn more and be involved in research within the field. As part of this CRESCENT KIDS will aim to increase formal patient and public involvement in the design of research projects across the sector by creating a Research Hub, for researchers to obtain feedback from families and young people about the projects they are developing. By providing vehicles for such support CRESCENT KIDS could play a role in enabling a greater number of paediatric haemoglobinopathies disease related research projects to be funded and undertaken.
Strategy Review and Development process
This strategy has arisen out of a consultation over a period of nine months and incorporated consultation with the following stakeholders:
- Young People
- CRESCENT KIDS Scientific Committee
- Medical Professionals
The consultation took place via a variety of routes:
- Advice from the Cochrane collaboration prioritization exercise in Haemoglobinopathy research.
- Surveys of parents and young people circulated via social media platforms and direct invitation.
- A residential consultation weekend with families and young people.
- Discussion and ratification made at Scientific Committee and Trustee Board Meetings.