Every child deserves the right to live a life without pain
Crescent Kids mission is provide vital support services to children and families impacted by Sickle Cell and Thalassemia.
We are a London based family; our first son was diagnosed with sickle cell when he was 2 weeks old. The impact has been devastating and affected every area of life, this condition requires more awareness, funding and treatment options.
We launched in 2020 during Covid 19; after crowdfunding to raise funds to provide Covid 19 care packages to families affected with Sickle Cell. Our overall aim as an organisation is to ‘stop the pain’. We provide support services to the family unit which enable them to navigate the devastating impact of this debilitating condition.
We need an increase in treatment options for this debilitating and life-threatening condition. The current options available are limited. Today, there are opportunities to transform this disease and the way we care for people with SCD and thalassemia.
Our work also includes accelerating research to improve outcomes for individuals with SCD. Together with your help we know we can improve the quality of life for all children suffering with this condition.
How we help?
Crescent Kids works to raise funds to provide research and funds for children with sickle cell and thalassemia. We are here to provide hope and a plan for a life without pain.
Crescent Kids is a UK registered charity with a simple achievable mission: stop the pain.
SCD is one of the most common genetic conditions in the world. The condition affects their quality of life, education, and social life and is life-threatening. The impact on the child and family unit is catastrophic and relentless.
The current situation is unacceptable, and we are setting out to change it People with sickle cell disease (SCD) are afflicted on two fronts — one by having a serious, chronic condition that inflicts pain and other complications — the other by a fragmented system of care.
We need your help to stop the pain
Through our projects in Nigeria and the UK, we have impacted hundreds of children living with the sickle cell disease
What is Sickle Cell Anemia & Thalassemia?
Sickle Cell is one of the most commonly inherited serious genetic disorders in the world and affects millions of people.
It is common among people from Africa; Spanish-speaking regions (South America, the Caribbean, and Central America); Saudi Arabia; India; and Mediterranean countries such as Turkey, Greece, and Italy.
Sickle cell & thalassaemia is a serious and lifelong condition, long-term treatment can help manage many of the problems associated with it. It is a disorder that affects hemoglobin, the molecule in red blood cells that deliver oxygen to cells throughout the body. People with this disorder have atypical hemoglobin molecules called hemoglobin S, which can distort red blood cells into a sickle, or crescent shape.
– Low number of red blood cells (anemia).
– Repeated infections
– Periodic episodes of chronic pain
The severity of symptoms varies from person to person. Some people have mild symptoms, while others are frequently hospitalized for more serious complications. The signs and symptoms of sickle cell disease are caused by the sickling of red blood cells. When red blood cells sickle, they break down prematurely, which can lead to anemia. Anemia can cause shortness of breath, fatigue, and delayed growth and development in children.
Painful episodes can occur when sickled red blood cells, which are stiff and inflexible, get stuck in small blood vessels. These episodes deprive tissues and organs of oxygen-rich blood and can lead to organ damage, especially in the lungs, kidneys, spleen, and brain. A particularly serious complication of sickle cell disease is high blood pressure in the blood vessels that supply the lungs (pulmonary hypertension). Pulmonary hypertension occurs in about one-third of adults with sickle cell disease and can lead to heart failure.
Crescent Kids aims to work towards a cure for children with Sickle Cell and Thalasseamia. A higher quality of medical care is required and is achievable. We want to be able to take away the pain episodes experienced by millions of children around the world.
If we can do what the medical world has done for HIV we will be very happy people. Currently a sickle cell sufferer has to endure chronic pain; current treatment is IV fluids, IV pain relief or regular Blood transfusions. These treatments are administered during hospital admissions and typically require a stay in hospital of between 5 – 10 days as a minimum. The only known cure currently is a bone marrow transplant via ideally a matched donor . The drain on the healthcare system is substantial, we believe there are better ways of managing this pain or ceasing pain episodes.
So we are funding research into crucial studies into future cures. Please help us stop the pain
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