Every child deserves a pain-free life
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We are a family based between London & Abuja. Our first son was diagnosed with sickle cell. He was 2 weeks old. Our whole world changed as we were thrown into the unknown. From the day of the diagnosis, we decided not to leave any stone unturned in the search for optimum health for our son. We have learnt so much over the last 10 years and that has been the inspiration for setting up Crescent Kids.
Crescent Kids launched in 2020. During Covid 19; after crowdfunding to raise funds to provide Covid 19 care packages to families affected with Sickle Cell. Our overall aim as an organisation is to ‘stop the pain’. We provide support services to the family unit which enable them to navigate the impact of this debilitating condition. Together with your help we know we can improve the quality of life for all children suffering with this condition.
How we help?
Crescent Kids works to raise funds to provide research and funds for children with sickle cell and thalassemia. We are here to provide hope and a plan for a life without pain.
We have one mission - stop the pain
Sickle Cell is the fastest growing genetic condition in the world. It affects a child’s quality of life, education, and social life and is life-threatening. The impact on the child and family unit is catastrophic.
Events & Outreach
How can you get involved?
Through our projects in Nigeria and the UK, we have impacted hundreds of children living with the sickle cell disease
What is Sickle Cell Anemia & Thalassemia?
Sickle Cell is one of the most commonly inherited serious genetic disorders in the world and affects millions of people.
It is common among people from Africa; Spanish-speaking regions (South America, the Caribbean, and Central America); Saudi Arabia; India; and Mediterranean countries such as Turkey, Greece, and Italy.
Sickle cell & thalassaemia is a serious and lifelong condition, long-term treatment can help manage many of the problems associated with it. It is a disorder that affects hemoglobin, the molecule in red blood cells that deliver oxygen to cells throughout the body. People with this disorder have atypical hemoglobin molecules called hemoglobin S, which can distort red blood cells into a sickle, or crescent shape.
– Low number of red blood cells (anemia).
– Repeated infections
– Periodic episodes of chronic pain
The severity of symptoms varies from person to person. Some people have mild symptoms, while others are frequently hospitalized for more serious complications. The signs and symptoms of sickle cell disease are caused by the sickling of red blood cells. When red blood cells sickle, they break down prematurely, which can lead to anemia. Anemia can cause shortness of breath, fatigue, and delayed growth and development in children.
Painful episodes can occur when sickled red blood cells, which are stiff and inflexible, get stuck in small blood vessels. These episodes deprive tissues and organs of oxygen-rich blood and can lead to organ damage, especially in the lungs, kidneys, spleen, and brain. A particularly serious complication of sickle cell disease is high blood pressure in the blood vessels that supply the lungs (pulmonary hypertension). Pulmonary hypertension occurs in about one-third of adults with sickle cell disease and can lead to heart failure.
Crescent Kids aims to work towards a cure for children with Sickle Cell and Thalasseamia. A higher quality of medical care is required and is achievable. We want to be able to take away the pain episodes experienced by millions of children around the world.
If we can do what the medical world has done for HIV we will be very happy people. Currently a sickle cell sufferer has to endure chronic pain; current treatment is IV fluids, IV pain relief or regular Blood transfusions. These treatments are administered during hospital admissions and typically require a stay in hospital of between 5 – 10 days as a minimum. The only known cure currently is a bone marrow transplant via ideally a matched donor . The drain on the healthcare system is substantial, we believe there are better ways of managing this pain or ceasing pain episodes.
So we are funding research into crucial studies into future cures. Please help us stop the pain
What people say about us
There are no words to describe the experience. With CK, I’m learning every day what I need to know for my daughter’s well-being and the health of my family in general.
- Stacey Sambury
Mum to Sickle Cell Warrior 5 yrs.
Amazing! It has been so informative. I learn something new every time we meet up. I like the encouragement and positive outlook that all the speakers and Vanessa share with us
- Betty Quayson
Mum to Sickle Cell Warrior 7 yrs.
CK has helped my daughter, very informative and engaging. We’ve learnt so much, if you are caring for someone with sickle cell, recommend you get in touch with this charity.
- Nisha Wong
Mum to Survivor
The work that the CK team have been doing is phenomenal. It is so noble and incredible the lives they’ve touched. I am a firm supporter of Crescent kids and I encourage everyone to.
- Christiana Okonkwo
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News & Feeds
How technology helped me build a career and raise my child with Sickle Cell
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