The need
Why is this study needed?
Why is this study needed?
Sickle cell disease is linked to recurrent episodes of acute pain and complications such as stroke and progressive organ damage, leading to frequent hospitalisations. Children’s school participation and academic attainment can be affected by SCD-related pain, fatigue, and neurological complications.
SCD predominantly affects people of sub-Saharan African, Caribbean, Middle Eastern, or Eastern Mediterranean descent. Patients too often face substandard care and negative attitudes due to stereotyping, structural racism, and inadequate awareness of SCD in the NHS.
Children with SCD are underrepresented in research, and there is limited national data on their health and educational outcomes. High-quality research is needed to give an updated, evidence-based picture of care for children with SCD in England.
Sickle cell disease is linked to recurrent episodes of acute pain and complications such as stroke and progressive organ damage, leading to frequent hospitalisations. Children’s school participation and academic attainment can be affected by SCD-related pain, fatigue, and neurological complications.
SCD predominantly affects people of sub-Saharan African, Caribbean, Middle Eastern, or Eastern Mediterranean descent. Patients too often face substandard care and negative attitudes due to stereotyping, structural racism, and inadequate awareness of SCD in the NHS.
Children with SCD are underrepresented in research, and there is limited national data on their health and educational outcomes. High-quality research is needed to give an updated, evidence-based picture of care for children with SCD in England.
